Prayers for Fabiana

We met a little girl at St. Clare School on our trip in June.  Her name is Fabiana and we just received some information regarding her medical condition. She has Epidermolysis Bullosa (EB). This is an inherited connective tissue disease causing blisters in the skin and mucosal membranes.  She develops blisters, like that of third degree burns. She has wounds that never heal and suffers daily due to the pain of her wounds. She has major medical problems like anemia and other complications from her wounds. Every time she moves around, her wounds are traumatized.

There are all sorts of studies here in the United States. There has also been clinical studies, performing bone marrow transplants, that have been successful in eliminating EB. Many of the studies are with adults because the FDA has very strict rules about using children in these studies. We're not sure how we can help her. We are doing some research on this.

Thanks to Charlie, we're forming a medical team to eventually travel to Peru. Charlie is a Physicians Assistant with a good heart.  Where there's a will, there's a way. Charlie (with the help of God) is looking into getting help for Fabiana. For now, all we can do is help Fabiana through prayer.

For more information about EB, please click on the link below:

http://dermatology.stanford.edu/gsdc/eb_clinic/trials/index.html